Tuesday 27th July 2004 ( Day 22 )
Alex had a fitful sleep until about 2am when he woke
and wanted to play. This I knew by the way his was
smiling and throwing toys at me. After an hour of
making Lego towers and scrunching paper, he toppled
over and fell asleep. Thank God. At 6 I had to wake
him so the on-call doctor could say he was fit to
travel. David rang just before 8am to say he was at
reception waiting to give us a lift. Nurse Julie was
just finishing removing his lines and taking blood
samples but we rushed down after that.
It took about 45 minutes to fight our way through
rush-hour traffic to LGI. There was no other
reasonable method to travel since we would have had
to book a ambulance 48 hour in advance. I did not
know Kirsten was going to have flu and so the car was
not here. Taxi and bus are out of the question for a
one-year-old with Leukaemia. David came and saved the
At LGI Alex was pushed to the front of the queue for
ultra-sound imaging of his heart and an ECG. Babies
have priority. After that it only took a few minutes
to get back to Jimmy's. One of the drugs used in
chemotherapy can change or damage the heart muscle so
his heart has to be monitored in detail to make sure
this is not happening. He will have to go for tests
for many years to come.
His temperature is down, around 36.5C so his energy
levels are up. Even so, he was tired from a late
night and early start but he fought sleep until
12:30. He managed to stay wake for an interview and
photos with the Evening Post but was asleep for the
Calendar New camera crew's visit. Little Sam next
door is the star of the show and always steels the
limelight in his pink dress and wig.
Wednesday 28th July 2004 ( Day 23 )
My birthday. I was at hospital for the morning.
Kirsten still had flu so could not come in to help.
It was nice to have Alex to myself on my birthday.
Lunchtime Joan came in to relieve me. Joan stayed
with Alex, who was very happy to be with his Nanna.
Kirsten, Tom, Andrew, David and I went up to the
sailing club with the intent to do some sailing and
have a picnic. It was quite a sunny day but the no
wind. We had a lovely picnic, Tom ate loads and had
great fun playing on the sandy beach.
That evening Kirsten and I went off to the pub in
Burley to meet friends: Becca (back from Aus for a
while), Jan, Helen, Jenny, Arianna and Elenor. We had
to divert via a few shops and petrol stations on the
way to find the Yorkshire Evening Standard, which had
the article about the new children's hospital, an
interview with me and a photo of Alex.
Thursday 29th July 2004 ( Day 24 )
We had a lazy lie-in and ambled off back the hospital
for lunchtime. Joan had had a good night with Alex
and he was in really good spirits went we arrived.
Thank you Joan.
Alex is well on the way to recovery after
chemotherapy. Much more energy and looks much better.
Stable temperatures means no infections.