Monday 15th November 2004 - Sunday 21th
November 2004 (Day ?)
Alex was monitored quite closely this week after
having a load of marrow taken out last week. His rash
has spread down to his cheeks. His legs also have a
different rash, more like eczema but quite red.
Alex's immune system has been deleted and regrown.
This means that he has to learn to defend himself
against viruses and bacterial infections all over
again. He will receive the normal inoculations - MMR,
etc - plus all the ones he's had before. We will be
directed by the consultants when he's due them.
The NG tube has been removed and the supplements are
being added to his milk. There's even a sign of hair
coming back. It's too short to see if it's going to
be flame red (ginger) again.