Monday 1st November 2004 - Sunday 7th November
2004 (Day ?)
At home. Alex has to be monitored quite closely. The
doctors have said the bacterial infection is
something called pseudomonas but I've probably spelt
it incorrectly because I can't find any details of it
on the web. He has not had any really bad
temperatures while at home so it's probably been
He's on two oral antibiotics, potassium supplements
and still has the feed over night.
On Wednesday Alex and I went into the Children's Day
hospital for a check-up and he also has a bone marrow
test under a general anaesthetic. He was due a bone
marrow harvest on Friday but it has been postponed
until next week.
Alex in himself is full of energy, still a bit clingy
but he's obviously glad to be home. His sleep
patterns are still a bit erratic but it's bonfire
night tonight and as I write this, it's like a war
zone outside and Alex has slept through it since
Since we could not go in for the bone marrow harvest,
today (Friday) we went to see Alex's great
grandparents in York, which he loved. I'm always
going to remember my Nan walking hand-in-hand with
little Alex around the house - not sure who was
happier: Nan or Alex? After that we popped in to see
the chaps at Omnicom to prove that I still do exist.
Kirsten and Tom have been generously given a
fantastic villa in Spain for the week and her
parents, along with family friends, Barbara and Nick,
are staying near by. It's just me and Alex at home
but we're getting along fine.