Thursday 1st July 2004 ( Day minus 5 - Alex's
We knew Alex was not feeling 100% because he did not
want to eat his birthday cake. Other than a loss of
appetite, there was nothing to really indicate he was
all that ill.
Friday 2nd July 2004 ( Day minus 4 )
His temperature was quite high so Kirsten took him to
the duty doctor at Ling House Surgery in Keighley. He
identified tonsillitis as being the cause of the
problem and prescribed an antibiotic.
Saturday 3rd July 2004 ( Day minus 3 )
Jon and Rania come to stay for the weekend. Alex was
a little poorly but still willing to play. He had not
consumed any food or liquids for 3 days.
Sunday 3rd July 2004 ( Day minus 2 )
Pub lunch with Joan, David, Rania and Jon. During the
lunch Alex was not happy. On the way home Kirsten and
Alex were dropped off at Airedale General Hospital to
see the on-call GP. He told Kirsten that Alex was
probably having a reaction to the antibiotic and
should stop taking it.
He still had a high temperature and developed a
panting. He was swollen all over but especially on
Monday 5th July 2004 ( Day minus 1 )
His temperature was still high and he was panting
even more. There was some bruising on his back, upper
legs and groin that looked like he had been poked
hard with the end of a knitting needle. We put it
down to playing hard with Tom. Joan and I took him
back to Ling House Surgery in Keighley. This time he
was seen by his own doctor and she was very worried
that he had not eaten or taken a drink for nearly
five days so she admitted him to hospital.
At Airedale General Hospital, we were seen on Ward 17
by an SHO who diagnosed a heavy cold. Kirsten came in
from work and Joan went back home. I went home for a
rest and Joan came back to keep Kirsten company.
During this time no-one came to see him.
Eventually a nurse came to say he would be
discharged. He was still looking very bad, 5 days of
not drinking and no drip since he looked well
hydrated. We later found that this is a symptom of
Kirsten found, while changing his nappy, that he have
a rather swollen willy. Joan insisted that a friend
of the family who is a urologist at Airedale should
be called to see Alex. Nick arrived and worked his
magic on Alex's willy, reducing the swelling. I
arrived back at Airedale during this operation and
Joan went home to collect Tom from school. While he
was without nappy, the consultant was called and
noticed the bruising. She was worried that Alex's
platelet count was low so ordered a blood test.
A while later we were taking into a quite room and
told that Alex most probably had leukaemia and would
need to be transfered to St James's in Leeds. We rang
relatives and friends. We waited till midnight for an
ambulance. It had been on the way several times but
was diverted by 999 calls. I followed the ambulance
in the car. The ambulance stopped once to put Alex
into bed since he was not settling on his Mum's lap.