Monday 1st November 2004 - Sunday 7th November 2004 (Day ?)

At home. Alex has to be monitored quite closely. The doctors have said the bacterial infection is something called pseudomonas but I've probably spelt it incorrectly because I can't find any details of it on the web. He has not had any really bad temperatures while at home so it's probably been beaten.

He's on two oral antibiotics, potassium supplements and still has the feed over night.

On Wednesday Alex and I went into the Children's Day hospital for a check-up and he also has a bone marrow test under a general anaesthetic. He was due a bone marrow harvest on Friday but it has been postponed until next week.

Alex in himself is full of energy, still a bit clingy but he's obviously glad to be home. His sleep patterns are still a bit erratic but it's bonfire night tonight and as I write this, it's like a war zone outside and Alex has slept through it since 18:00.

Since we could not go in for the bone marrow harvest, today (Friday) we went to see Alex's great grandparents in York, which he loved. I'm always going to remember my Nan walking hand-in-hand with little Alex around the house - not sure who was happier: Nan or Alex? After that we popped in to see the chaps at Omnicom to prove that I still do exist.

Kirsten and Tom have been generously given a fantastic villa in Spain for the week and her parents, along with family friends, Barbara and Nick, are staying near by. It's just me and Alex at home but we're getting along fine.